The Timms review has explicitly linked personal independence payment (PIP) with work as part of a public consultation so appallingly designed as to not be fit for purpose. 

The online consultation was published by the DWP at 8am today, with a closing date of 28 May.

There are just four questions.

1. How effectively is PIP delivering on its intended role and purpose?

What is the difference between a role and a purpose?  Presumably the committee think there is a difference, but the terms are not defined.

Most importantly though, what was PIP’s intended role/purpose? The committee don’t tell us.  Many probably don’t know what the intended purpose was. Many people might say it is to help with the additional costs of disability.    And some will consider that its original purpose was to cut the benefits bill by replacing DLA for adults with what was intended to be a much less generous system.

So, when the DWP analyse responses to this question, they won’t even know what any particular respondent has in mind as PIP’s role when they answered it.  Which makes any analysis worthless.

2 Does the PIP assessment, including the assessment criteria, effectively capture the impact of long-term health conditions and disability in the modern world, and provide fair access to the right support at the right level across the benefits system?

It is hard to know where to start with this question.  It would be possible to write a whole thesis on why this fails as a tool for capturing responses that can be analysed in any meaningful way.

But, we could ask what “the PIP assessment, including the assessment criteria” actually means?  Do they want people to include their opinion of the effectiveness of the “How your disability affects you” form; of their own and the DWP’s collection of medical evidence; of the types of health professionals used; of the guidance and training that health professionals and decision makers receive; of the effectiveness of telephone, video and face-to-face assessments; of the system of challenging decisions; as well as analysing the entire points system for PIP?

Equally, what does “capture the impact of long-term health conditions and disability in the modern world” mean?  The impact on what?  On people’s ability to meet their everyday care needs, their ability to get around outdoors, to be treated fairly and respectfully, to take part fully in society?  There are so many possibilities

In addition, what does “provide fair access to the right support at the right level across the benefits system” mean? Does it mean passporting to other benefits and premiums or something else entirely?  A few examples would have been very helpful.

But most of all this is a terrible question because it has so many parts, and all so ill-defined, that it will be utterly impossible to analyse responses in any meaningful way.  All that can realistically be done with thousands of answers to such a complex series of linked questions is feed them to AI and accept whatever slop it produces as a summary of the answers.

3 What is the experience of people claiming PIP and does this vary for different groups of people?

This may be a valid question. 

But a much more important question for members of the public is what is your experience of claiming PIP.  Many people will not know about  “the experience of people” and whether this varies, they will only know about their own experience, but they are not being explicitly asked this most basic of questions.

4.  What has changed in wider society and the workplace since 2013 (and might be expected to change in the future) and how has this impacted PIP and does PIP need to change accordingly?

Again, an extraordinarily complex question that seems to require the creation of a history lesson, some prophesies about the future plus an analysis of PIP as it is now and suggestions for change.

Most worryingly of all is the assumption that changes in the workplace are relevant to PIP, even though PIP can currently be claimed regardless of your employment status or income.

Workplace changes should be irrelevant to PIP and it is deeply concerning that this is one of the issues being consulted on.

There is just one box in which to answer all these questions, plus an “Is there anything else you would like to tell us?” box. 

Benefits and Work suggests you use the anything else box to tell the committee what you think of the usefulness of the questions.

You are then asked if you are answering as:

  • A disabled person or a person with a long-term health condition
  • A carer for a disabled person or a person with a long-term health condition
  • An organisation that supports and/or represents disabled people and people with health conditions
  • A clinician or other expert
  • A Member of Parliament
  • A think-tank or academic

However, the questionnaire is anonymous, so anybody can claim to be anything they like and the DWP will have no way of verifying the answer, making the question essentially pointless.

Benefits and Work does absolutely believe that readers should respond to this survey, but we also believe it is so unfit for purpose that any decisions based on it may be open to legal challenge.

The consultation closes on 28 May.

You can find more details here and the Call for Evidence form is here.  

Update

The Timms steering group have now published more details on the the information the questions are designed to collect.  For example, question 4 wants opinions on:

  • the factors contributing to increased disability prevalence in society including different conditions, ages, people, and terminal illness
  • the impact of changes in wider society on disability prevalence and the rising number of PIP claimants
  • the impact of changes in the workplace and labour market
  • the flexibility of PIP to adapt to future changes in disability and society
  • adapting to the future abolition of the Work Capability Assessment (WCA) and other changes to benefits
  • how PIP can remain within fixed financial limits

 The fact remains that the questions are extraordinarily complex and they do not produce measurable results.  It has the feel of being the stage before you do the hard work of designing a detailed questionnaire that will be easy for readers to understand and respond to and will produce quantifiable results (for example, the numbers who agree or disagree with a particular statement) as well as open questions that allow respondents to give more details about why they chose the answer they did.

See also: Is the Timms review a con and should you respond?

 

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  • Thank you for your comment. Comments are moderated before being published.
    · 20 days ago
    These are the questions Timms should have been asking at the very beginning, and researching via the appropriate sources in order to compile a survey. He's sending this out to the wrong people.

    The scope of the questions is too big and it's not within the capability of anyone surveyed in this way to answer meaningfully. This set of questions is practically a PhD proposal. Each element is a survey/research topic in itself.
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      · 19 days ago
      @D Agree 
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      · 20 days ago
      @sara But in a way because this document has been written like the early stages of writing a questionnaire this may actually us more scope in the responses that we give them as the questions are more vague if you get my meaning

      The first dwp ‘consultation’ questions were so narrow in scope and weren’t even true questions (more ‘we’ve already decided what we are doing, your okay with that right?). These questions are a 180 on that.

      In many way these new ‘questions’ are so vague it gives us license to be ‘unchained’ and unheld back in our answering……….in many ways it’s the best opportunity to share our blunt opinions with the ppl shaping pip reform (that is if timms people read the responses - but we know the number of responses data is recorded and made public)

      Also the comment on because responding to this document is anonymous and you can’t tell which response is from a disabled person and which is from a critic - I think many disabled will feel more confortable submitting anonymously and honestly I can’t see many ppl in society who regularly attack disabled ppl & welfare being willing to take the time to compose a decent length response (not in the depth & passion compared with someone of lived experience of living with a disability and having gone through the pip process in full at least once)
  • Thank you for your comment. Comments are moderated before being published.
    · 20 days ago
    There's no way this survey is aimed at the majority of claimants. So it has failed immediately at any pretence of co-production. 
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      · 19 days ago
      @D Why would you assume anything? Registering my objection is not the same as doing nothing.

      It’s times like this I find some people so frustrating if they don’t take a step back to think that not everyone goes about things in the same way and many of us are well practised and pretty accomplished at avoiding overloading as well as encouraging others to cope with challenges in their own way, rather than making patronising suggestions.

      There's nothing wrong with interrogating the process .
    • Thank you for your comment. Comments are moderated before being published.
      · 20 days ago
      @rookie Everything the timms report up till now has been designed to be off putting and discourage disabled people from sharing their voice and being heard. 

      We all know that timms never intended to co-produce and would actively look to ‘block’ our input (without actually blocking it as if the dwp were proven to be actively blocking the co production with the disabled community from sharing input the courts could reorder them to start the ‘timms report’ or similar from scratch - as I said receipts matter).

      I presume you are not going to take part in this questionnaire as it fails in co production and the questionnaire itself is very half baked and muddled. Well you will be responding exactly how McFadden and timms want you to - calling a foul but doing nothing out of protest.

      Anyone following this saga could tell you timms and McFadden would through the kitchen sink of obstacles in our way to having our say but would not be able to lock the door once we found a way to reach it (just make it difficult to reach it and use any method to discourage forward movement)

      The timms report is playing dirty that I agree on - this questionaire looks a mess and hard to unpick (designed to discourage) but if you break it down and work through it with others online it’s a questionnaire that allows for a wide range of answers - you just have to be brave, self motivate and power through as this is probably the only change we’ll get to give our own input to the timms report and we’d be ignorant not to send responses and give timms the response that playing dirty and fixing the result won’t stop the disabled community fighting back (if any group is used to others putting barriers in our way it’s the disabled community)

      It’s times like this I find many of the disabled community so frustrating because so many of you are smart (you have to be to navigate uk society right now with a disability) but don’t think to take a step back to look at thinks and break things down into more manageable bits to avoid overloading - not only concluding it’s pointless but also trying to get others to not even trying.

      As I said I hope disability online forums like work&benefits are considering writing a guide breaking down this questionnaire further and doing some ‘decoding’ too - we know this is farcical and a mess but let’s detangle it together and turn the joke on timms




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      · 19 days ago
      @YogiBear I have zero faith  in any of them
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      · 20 days ago
      @ANGELA Everyone needs to be filling this in.
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    · 20 days ago
    Heath Robbinson comes to mind....best thing to do in no one at all replies. That way the decisions made by Tim's has no validity at all.
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    · 20 days ago
    So are they not going to bother reading the previous responses to the pathways to work green paper?

    As for the question about changes to the workplace since 2013. We know they plan to abolish the WCA and with it LCW and LCWRA status and have the new PIP assessment system determine eligibility to UC severe conditions group and UC health, and so claimants conditionality and sanctions regimes.

    With the PIP review steering committee meeting only 5 days a month, and it seems just starting to decide how they will ask for input from disabled people's organizations, and just starting to ask the general public for their input. How long are they going to have to read the input and decide what they are going to do. With the Timms review report expected in November 2026.

    I think it is all just a façade.
    • Thank you for your comment. Comments are moderated before being published.
      · 19 days ago
      @godgivemestrength Good idea is there a template that everybody could copy and post ??
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      · 19 days ago
      @D I meant a waste of time because the questions, as so often in surveys, don't give an opportunity to tell the truth. If our responses ignore the questions and write what we want to be known, which could be what has happened in previous surveys, that might achieve something. It's just such an insult to pose a set of questions which makes it so hard for respondents to say what needs to be said, which is why we should challenge the survey, not just go along with it. We need to do the politician's thing, and answer the question we wanted asking, not the one put to us.
    • Thank you for your comment. Comments are moderated before being published.
      · 20 days ago
      @godgivemestrength Actually under previous consultations (basically gov version of a survey/questionnaire that anyone in the public can send a response to) launched by the dwp the past 5 odd years there has been more responses each time compared to the last and those responses have gotten some concessions/got the gov to drop a few nasty ideas.

      Admittedly that was the case with dwp consultations launched in the last few years of the tories when they were in charge (the only Labour dwp ‘consultation’ so far was only one in title and Labour had basically fixed that one)

      Since then Labour dwp under McFadden & timms have promised to involve and listen to the disabled community in their second attempt at welfare reforms (yes most likely they had their fingers crossed behind their backs when saying it but the receipts will be useful in any legal case against the dwp sec of state)

      Those saying that no one should respond to these questions so to invalidate the timms report (I’m guessing by the logic that if no one from the disabled community volunteers to take part in the process it invalidates all of the results?) but I would argue that the opposite is true and you are giving McFadden and timms a free pass to create whatever monstrous reform plans they want and they can legibly argue that as no or few disabled gave feedback they therefore had the disability community full approval to use their own judgement in reform planning.

      To me it looks worse for those two if this questionnaire gets a similar number of responses as the last dwp consultation (47k) and timms/mcfadden totally ignore it and propose the least secret dwp reform plans that were written last summer.

      I recommend those that have already posted that these questionaires are pointless and waste of time do a little more research - the wca consultation in 2023 got 1,348 responses and the pip consultation started by the tories got 16,071 response and the 1st dwp consultation put forward by Labour got 47,983 responses

      You wouldn’t see those sort of % increases in responses over 3 incapacity welfare related consultations across 3 years and the sheer time & effect disabled ppl and their support systems were obviously putting into responses if they were just getting point blank ignored!
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      · 20 days ago
      @John Going through the motions. Incapable of achieving anything workable. Total waste of money. Complete joke (just not funny). The best response to the survey is to copy and paste the B&W analysis above into the "anything else" box.

      We know surveys have been discounted as useless in the past, so they can be again.