Labour is launching a review to decide whether some mental health and neurodivergence issues are being overdiagnosed.  The Health Service Journal (HSJ) reports that a highly controversial figure will play a lead role.

The review has been ordered by Wes Streeting, secretary of state for health and social care.

According to HSJ (paywall) the chair of the review will be psychoanalyst and clinical psychologist Peter Fonagy.

The vice chair will be the hugely divisive academic Sir Simon Wessely, Professor of Psychological Medicine at the Institute of Psychiatry, Psychology & Neuroscience, Kings College.

Back in 2011, the Times called Wessely “the most hated doctor in Britain”.  He was widely regarded by people living with ME/CFS as having popularised the idea that ME/CFS is a primarily a psychological condition, rather than a physical health one.

Amongst other things, this made it much more difficult for people with debilitating ME/CFS to score points for physical health activities when applying for benefits.

As a result of his publications, Wessely says he was threatened and harassed to such an extent that he gave up his research and went to work for the military in Iraq and Afghanistan, where he claimed he felt safer.

So, it is more than a little surprising that Wessely has chosen to play such a prominent role in research that could be just as controversial as his work on ME/CFS.

Especially as there is a strong probability that many people will consider the outcome of the research a foregone conclusion, with the government heavily leaning in one direction.

Back in March, the minister behind this review told the BBC that there was an “overdiagnosis” of mental health conditions and that “there’s too many people being written off”.  Streeting’s comments came in the context of Labour preparing to announce massive cuts to personal independence payment (PIP) which they were subsequently forced to drop, following a backbench revolt.

And yesterday, prime minister Keir Starmer told Radio 4 that:

“I think we need to look again at this issue of mental health and ask ourselves a fundamental question, which is: would we not be better putting our money in the resources and support that is needed for mental health than simply saying, it’s to be provided in benefits?”

“I’m not saying you shouldn’t have benefits for mental health issues, but I do think we need to examine this quite carefully. I have to say, I am particularly concerned about young people in this regard – there are about a million young people who are on benefits, not all for mental health issues, but quite a number for mental health issues.

“I think that is wrong, and I don’t just say that because of the spending implications. I say it because if you are on benefits in your twenties, it is going to be extremely difficult to get off benefits for the rest of your life. It is not good, and there’s a million young people in that position. So there’s a moral case for changing that, that I’m perfectly prepared to make.”

There can be little doubt, then, about the government’s attitude to levels of mental health diagnosis.

When Labour attempted to push through its cuts to PIP earlier this year, one of the criticisms made of ministers was that they failed to prepare the ground with backbenchers.  Instead of doing their homework and creating well researched arguments for reducing the number of awards, they simply stated that there was a need to find savings.

So, it looks like ministers have now learnt their lesson and this review is part of an attempt to lay a medical and academic foundation for benefits cuts.

But, if that is the case, it seems astonishing that they have chosen Wessely to play such a public role, knowing his history with claimants.  Unless, of course, Streeting has failed to do his homework yet again.

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  • Thank you for your comment. Comments are moderated before being published.
    · 2 days ago
    I keep hearing that people get 'stuck' in the benefits system. The government is labelling this as a disservice to those people, which is just a better sounding way to say they need to make cuts to  welfare spending. 
    Have they any idea how hard it is to get PIP? They make it sound as if you can just rock up and request it. And as for reviews, I spent 9 months on tenterhooks waiting for DWP to decide whether I still warranted my award - 9 months that impacted my mental health. 
    And as for ADHD diagnoses, they are damn near impossible to get and I'm sick of hearing that mental health/neurodivergence is the main problem with the benefits system.
    I would really like the government to come and live a week in my shoes. Because they don't have people with mental health problems in the government does not mean that it doesn't exist. Mental health issues and neurodivergence are REAL things, and I suspect that those that have both, like me, woukd gladly give them up if they could. 
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    · 12 days ago
    Well, I suggest we all chip in to get Sir Simon Wessely a first class ticket back to Iraq! 
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    · 14 days ago
    Is there no end to this witch hunt don’t this government understand what devastating affect it will have on those with mental health conditions and autism 
    of course they don’t as they have no compassion no understanding no training in mental health or autism and neither has this so called professional who they are bringing in 
    They really do not want those with mental health conditions and autism to be alive do they 
    As life is hard enough for those on the spectrum with mental health conditions due to society’s ignorance and the government 
    For some it’s a daily struggle for them to get out of bed and eat and to try to exist in a none neurodivergent society some need 24 7 care some have different support and care needs yet all are vulnerable and need treating with understanding and respect 
    Not being treated like lying scum bags and being penalised for having mental health conditions and being on the spectrum  
    And yet again the goverment just doing this to claw money back from the most vulnerable and try to disguise this with some report written by some one one should never have been allowed to do a report in the first place 
    There will be more suicides more self harm more people on the spectrum and who have mental health conditions left in mental health crisis and left destitute and homeless and starving on the streets but this government doesn’t care they just wants to persecute punish and discriminate to get benefits stripped from those who need it the most 
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    · 15 days ago
    think honestly discrimination . people in power should all be jailed . world at this point being run by lunatics . government pow wow people should be charged . against law for disabled most vunerable people to be put in corner not be able voice opinion . distcusting poverty we re all experiencing . world have gone raving mad . war crimes highest criminal offence oligarchs etc . we re all becoming victims.  
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    · 15 days ago
    So our young people have been through a terrifying pandemic which isolated them from their normal lives, and to a large degree are still dealing with the consequences, and moreover, many people are suffering from long Covid, and somehow this is overdiagnosis. Talk about commenting from a standpoint of privilege! 
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    · 15 days ago
    Is it the start of a slippery slope? Close friend of mine has schizophrenia. He was diagnosed 20 years ago but it was obvious something was ' off' from when he was a youngster. It was only when he had a really bad ' episode ' shall we call it and ended up being sectioned we found out why. He's great now,meds all sorted. He's lovely! He gets PIP and universal credit but would sooner have had the career he wanted than not need it. 
    This government don't give a damn about real people
  • Thank you for your comment. Comments are moderated before being published.
    · 15 days ago
    Several issues here for me:

    What happens when you individualise mental health issues? You essentially stigmatise people who have it. And what group in society are most likely to be affected by this? Young people.
    Why are young people suffering with their mental health? The pressures placed upon them are high with less opportunities. We have failed them as a society.
    Who are the people the least likely to understand this? Rich, privileged politicians!

    Let's take the diagnosis argument apart:

    Why is anxiety and depression being targeted?
    So many people are diagnosed with it because society is broken and the world is a more precarious place than ever before.
    Why do doctors so call "over prescribe" it?
    Because doctors don't have the time or resources to undertake proper consultations with their patients. So many conditions overlap with the symptoms.

    Why are more people being diagnosed with ADHD?
    Because there was a huge under diagnosis of particularly women of ADHD, mainly due to medical gender bias and lack of awareness Ie the difference in presentation of symptoms between men and women.
    Why are more people coming forward for a diagnosis?
    Because they experience around the expectations placed upon them, living in a neuro typical world. A world in which we are being told is now more accepting and accommodating of difference.
    Why is the NHS a part of the problem?
    Because it is underfunded and cannot cope. Hence there has been an influx of private hospitals, some of whom have been known to diagnose and treat people, more for financial gain.

    Who are the people least likely to resolve these issues?
    Rich, privileged politicians!

    Lastly, benefit fraud is estimated to cost around £2 billion, including the cost of government departments in place aimed at tackling it. Tax evasion, costs around £20 billion, with a comparable lack of instructional investment aimed at tackling it.

    Who are the people least likely to resolve these issues?
    You guessed it!!
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    · 15 days ago
    Another attempt to claw back money from the most vulnerable members of society as a smokescreen for Government mismanagement of finances. 
    In my opinion, whether or not there are psychosomatic elements to these conditions, that does not lessen the physical challenges experienced by sufferers.
    There is already enough stigma attached to both ME and mental health conditions without these views being popularised by those who are elected to serve us.
    Shame on them!
  • Thank you for your comment. Comments are moderated before being published.
    · 16 days ago
    "Back in 2011, the Times called Wessely “the most hated doctor in Britain”. He was widely regarded by people living with ME/CFS as having popularised the idea that ME/CFS is a primarily a psychological condition, rather than a physical health one."

    I took part in the biggest CFS/ME study to date looking at DNA.  The findings were published last month.  From the researchers, headed by Professor Chris Ponting, DecodeME lead investigator, University of Edinburgh:

    "The DecodeME team is delighted to announce that the initial analysis of 15,579 DNA samples is complete, and we have important news to share.

    06 August 2025

    The DecodeME team is delighted to announce that the initial analysis of 15,579 DNA samples is complete, and we have important news to share.

    Main findings from our analysis

    Your genes contribute to your chances of developing ME/CFS.

    People with an ME/CFS diagnosis have significant genetic differences in their DNA compared to the general population. These lie in many places across the genome, and do not impact just one gene.
    Eight genetic signals have been identified. As DNA doesn’t change with ME/CFS onset, these findings reflect causes rather than effects of ME/CFS.
    The signals discovered are involved in the immune and the nervous systems, indicating immunological and neurological causes to this poorly understood disease.
    At least two of the signals relate to the body’s response to infection. Other signals point to the nervous system, one of which researchers previously found in people experiencing chronic pain, reinforcing neurological contributions to ME/CFS. These signals align with how people with ME/CFS describe their illness.

    Results Summary

    Myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) is a common, disabling illness. It affects more females than males, and in most cases, starts after an infection. Little is known about the biological mechanisms that cause ME/CFS, despite many attempts to uncover them, and it has no effective treatments.

    To understand ME/CFS better, our study, DecodeME, compared the DNA of 15,579 people with ME/CFS with the DNA of 259,909 people without ME/CFS, all of European descent. DNA is a molecule that makes up our genes. Our genes make many different molecules called proteins, each of which does very specific things in the body. Finding variations in genes that differ between people with or without a disease can therefore point to what causes it.

    We found that people with ME/CFS are more likely to carry certain DNA differences in eight regions of their genome, and so these variants tell us about possible biological causes of ME/CFS. However, as these differences are also often found in people without ME/CFS they cannot cleanly separate who is at risk and who is not, and therefore do not provide a definitive test. Most of these regions contain several genes.

    Our methods did not allow us to conclusively locate the ones most relevant to ME/CFS in each region, but public data allowed us to pick out the most likely ones. Three of the most likely genes produce proteins that respond to an infection. Another likely gene is related to chronic pain. None are related to depression or anxiety. We found nothing to explain why more females than males get ME/CFS.

    Overall, DecodeME shows that ME/CFS is partly caused by genes related to the immune and nervous systems."

    I find it really disturbing that a so-called medical expert makes an uninformed opinion and statement about something he knows very little.

    We will probably be calling him a dogmatist as well as people like that rarely change their opinion, even when confronted with evidence to the contrary.
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    · 16 days ago
    I am 71, have had ME/CFS for 20 years and had to go to appeal twice to get PIP, partly due I’m sure to Simon Wesley‘s views and influence. Six years ago I was actually diagnosed as autistic, very late in the day. I believe they could be linked, so the thought of him having any influence on decisions about overdiagnosis of NEURODIVERGENCE horrifies me. As for overdiagnosis, when I was young, they didn’t believe women had autism. People are now becoming more aware of the differences in our brains. The more support we have when young, the less need there will be to support us when we are older.
  • Thank you for your comment. Comments are moderated before being published.
    · 16 days ago
    Having just seen my 21 year old son go through the awful NHS diagnostic system, no one and I mean no one has been over diagnosed. It took over 5 years to even get seen, the appointments were intense and grilling, several hours over several appointments and we are still not finished. I am so proud of how he coped to be honest. I love how these people just think they are qualified enough to make a judgement without even speaking with those affected by Neurodiversity. Like men making decisions about women’s health, just leave them alone, the challenges of day to day life should not be made harder because some bored professor likely influenced by those in the USA has decided to demonise a group of people yet again and for what? To take money away from them? Ridiculous! 
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    · 16 days ago
    Many people see mental health in all its forms As the new bad back for claiming Just money for old rope While some will always exploit any benefits system That does not mean that everyone is So it is not real or valid  Or that it does not cause real harm , complications or suffering to those dealing with mental health and/or neurodivergence While I would always welcome any help for those who need it As new avenues of help should be applauded This investigations independence and likely outcomes do seem t be suspect
    • Thank you for your comment. Comments are moderated before being published.
      · 15 days ago
      @CC And there's the rub, isn't there? Trying to take away financial awards without first having the support in place. 
  • Thank you for your comment. Comments are moderated before being published.
    · 16 days ago
    Starmer and Lammy are in no position to claim that people are being misdiagnosed. Only psychiatrists are legally allowed to diagnose people.
  • Thank you for your comment. Comments are moderated before being published.
    · 16 days ago
     I have been diagnosed with autism to a severe degree, depression, and anxiety. I also have nocturnal epilepsy. I do get a pip allowance and on it I received 4 points for a certain category. I believe the government did state that anyone who didn't receive 4 points on one category would not be entitled to pip.   They then changed there mind. I was wondering that if the rules changed again and you needed 4 points could the dwp swap my 4 point award for something else just to make sure I wasn't entitled to pip? My needs havnt changed after all. I was also wondering that the government keeps stating young people with  mental illness. I do believe this is unfair but would the same rules apply to people who are in there 50s and 60s. It's obvious to me that the government are under pressure and usually the disabled will pay, after all they're the easiest to do it to.   I do believe pensioners should be looked after but don't you think the triple lock could be pegged back a little, just while the country sorts itself out. This will never happen though because the pensioners vote more than anyother group of people and no party would risk of loosing voters, whever it was right or wrong. To me it shows how selfish and narcissistic governments can be.   "Shit we're in a hole, let the poor and disabled pay that'll sort it out, they can take it. It might even make us a bit more popular." The head of works and pensions said.
  • Thank you for your comment. Comments are moderated before being published.
    · 16 days ago
    We cannot expect people with trauma and m.h issues to be in work without having had support to heal and work through their difficulties. Funding needs to be provided for good mental health support and make sure that work pays then we might see more people able to enter the workforce. We cannot build without strong foundations. People can heal with time, support and understanding. Unfortunately, this is is merely only gestured not prioritised.
  • Thank you for your comment. Comments are moderated before being published.
    · 16 days ago
    None of these MPs and their wealthy comrades demonising poorly people seem to ever mention 'stress-related illness'. Austerity has been going on for decades now, so a whole generation of children has grown up in poor households, often in terrible housing causing ill-health and stress, with poor diets affecting their learning in schools that don't always have quality tuition.  Now jobs are insecure and the pay doesn't even cover the basics, rentals are sky high and people are stressed within an inch of their lives just trying to keep a roof over their heads and put food on the table. Food is extortionately expensive and eating healthily on benefits is hard, even for a single person household. Providing decent housing, upping the housing benefit and preventing homelessness would go a long way in helping people to stress less. It would be good to know where all these fabulous, stable, full-time, well-paid jobs are too. Outside Westminster, that is...
  • Thank you for your comment. Comments are moderated before being published.
    · 16 days ago
    I have ME and it was hell to claim benefits in the first place. Who is this Labour government that I fail to recognize. It has already caused me to have a panic attack, and feel sick. 
    • Thank you for your comment. Comments are moderated before being published.
      · 16 days ago
      @Jay1 A rather insensitive response, Jay1  . . . while 'panic attacks, anxiety and depression' have, it is true, become the ubiquitous 'slang' for some young folk when they have simply 'had a bad day' (I have heard them first hand) for those who suffer the horrendous affliction that is anxiety and/or depression, it is without meaningful support and understanding a very distressing condition with horrible physical symptoms.  
    • Thank you for your comment. Comments are moderated before being published.
      · 16 days ago
      @Sarah. B Simon Wesseley would love this response to M.E
  • Thank you for your comment. Comments are moderated before being published.
    · 16 days ago
    is it possible to make a petition or issue a collective complain about this? this is violence to the mentally ill. 
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    · 16 days ago
    It does sound very much like a case of "hasn't done homework properly or at all". The biggest mistake any government made was when the Tories closed down psychiatric units and sold them off to developers as part of their "Care In The Community" program, a policy which quickly proved to be and was quickly dubbed "Couldn't Care Less In The Community" and resulted in suicides and those with complex mental health issues falling through the cracks. Those who have been caused long-term psychological harm by Post-Traumatic Stress related to armed conflict and physical and sexual abuse should not be ignored or demonised, but looked after properly and steps taken to treat the psychological harm caused as well as the physical harm suffered with the correct medical and financial support needed. Politicians must stop dancing to the tune of their financial backers and 'think tanks' and listen to those who are at the sharp end - the patients - and those who have to care for them, as well as those in the clinical professions who want to help, but are prevented from doing so by political ideology. 
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      · 16 days ago
      @Michael What a wonderful, meaningful and much considered statement, Michael; I agree with all that you say.  And it sounds like your words come from a place of experience.  I worked with female prisoners a decade ago, as a Tutor and Mentor;  the vast majority of those women and girls had been abused in one form or another for much of their lives and, their inability to cope with the ordinary stuff like shopping, paying a bill, or - raising a child meant that, they found themsleves in court and unjustly - in many cases - in prison.  A hugely expensive, nonsensicle state of affairs.  If only - the money would be spent supporting and giving genuine help to those who are suffering, they and we would all benefit in the long run.  Prison does NOT WORK, and neither will forcing young folk into work when they feel they are 'less than'.
  • Thank you for your comment. Comments are moderated before being published.
    · 16 days ago
    OMG! 😧 
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