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Other minority groups that were historically persecuted have created rights movements to protect themselves from discrimination.

▪Monarchy - anti-democratic.

▪Heriditary Lords - anti-democratic.

▪First-past-the-post system - anti-democratic.

▪Party whip system - anti-democratic.

▪Bait-and-switch manifestos - anti-democratic.

The facts speak for themselves.

Until that comes into force, the risk of trying a job or self-employment far exceeds the reward.

That is only good change they are proposing, and is only relevant for some of us.

We really need the safety net of a continued LCWRA guarantee to be in place before we start work or self-employment.

Until the Right To Try: No Reassessment guarantee is in active force, we cannot attempt anything, because if it doesn't work out, our survival is endangered.

I got mental health help & was diagnosed with ptsd. I did talk therapy for months, but that timed out. I asked for an mri & was diagnosed with spondylosis on the area scanned. I’m taking medication for physical & mental health. I struggle with daily activities & mobility & after assessment, I was awarded standard living component but only scored 4 for mobility a am not paid that part. I’ll not go over everything here but will focus on the main thing that’ll affect me with the new 4 points. To start I need help with washing & dressing my lower body & need help getting in or out a bath. Both of these areas, where need help. If I try to get in the bath & while getting out the bath, washing & dressing my lower body, mostly it pulls on my back & causes very painful spasms. I then have to get diazepam from my dr to release the spasms. This can take 3-4day to ease the spasms. While I have spasms, I can barely walk, perhaps a few steps with a stick to the toilet. I cannot clean myself tho. I cannot walk more than a few steps. Can’t get up sit down easily. Can’t so or stand to cook. Cannot twist either way. I get 2 points for lower body & 3 for bath. So I’ll no be eligible for standard living pip. If they was to review the point & raise lower body care to 4 or the getting in or out the bath, then I’d be eligible for standard living. If the don’t raise this or cancel the 4 points idea, I’ll be left in such pain because of the spasms, that I’ll end up being entitled to the higher payment in living & mobility. Because I’m almost completely immobile with these spasms. It confuses me but I’m also anxious about losing this payment, which pay for help with my daily struggle to bath & dress. I cannot afford this care more than twice a week, on lower standard amount,  but it’s helped improve my mental well-being. I’d gladly work if possible, but by removing my pip, I’ll become more disabled. I truly hope the government reconsiders or perhaps looks into reviewing the points system, by upping some points. Importantly, I hope consider consulting on this issue, because they need to get it right. If rushed through, not only will this cause suffering to the vulnerable, eventually I’ll cost even more money. Like in my case. It needs to be addressed. I agree there’s many people exploiting the system, that must stop. But not by rushing it through parliament in a very hushed way. Or by punishing people in genuine need. Like In my case, where it would end up costing the government more. It will take me a long time to apply again. Leaving me in pain until I’m awarded even higher rate of pip. I’d rather the government took a little more time over this. I’d  stay in the lower payment than suffer painful spasms & not be mobile for months at a time. Just because the point system is wrong. Let’s hope the government actually realise they need to look in closer detail. 

I will probably have to go through it all again when next assessed....

I am deaf both ear since birth, no hearing aids cos they no benefits to my need. I scored 8 points in communcation in daily living and 10 points in planning and journey in mobility.

I am very distressing - will I get PIP under new 4 points?

I try to stay positive but as I've always told myself...they are the government, they can do want they like !  Despite so called consultations, they are just a formality, many decisions are already made. 

But let's hope that the protests against these discriminatory and cruel changes have some impact and that disability organisations will also be listened to.

We'll just have to deal with it when if and when it ever happens, but we won't be doing that alone. 

Firstly, the consultation is going to have a series of in-person and virtual events where we can give our views.  That's going to be unpleasant for the people running them, I should imagine!!   The details of those events can be found at:  

We can but hope.