No 4 point PIP descriptors results

Submission ID: 1163224
Date: 2025-04-09 12:06:30
Nickname: H77
Age: 45-55
Main health condition: Physical health
Main conditions that affect daily living: Myalgic Encephalomyelitis
Postural Orthostatic Tachycardia
Joint hypermobility
Chronic Migraines
Arthritis
Hearing Impairment
IBS
Rate of PIP daily living component: Standard
4 point descriptor score: No
Possibility to score at least one 4-point daily living descriptor at the next review: Very unlikely even though I use multiple aids and adaptations at home
Tasks you struggle with on a day-to-day basis: Due to severe fatigue and dizziness, I only shower once or twice a week and make do with a brief wash most days at a sink or using baby wipes.
I struggle to stand for more than a few minutes which can make it difficult to prepare meals
I do not currently have a carer, I manage fairly well at present even with my limitations but if my condition worsened I could struggle. Nevertheless I remain virtually housebound. I do my grocery shopping online.
If my current level of benefit was reduced further, I am unable to work even from home with my fatigue levels annd anffected cognition, and do not know what I could do to support myself.
Expected income you will lose if the Green Paper cuts are imposed: I would lose the standard daily living component along with the severe disability premium. I would then expect my ESA to be affected so I could potentially end up with no money to live on.
Expected problems if you tried moving into work, with support from a work coach: I have been unwell for almost twenty years. In that period I have tried a number of times to return to work. Employers made no adjustments for my illnesses and I was expected to keep up at the same pace as more able-bodied employees. As a result I became even more unwell than before.

As things stand, even if adjustments could be made for my fluctuating conditions, I would expect to still remain at a high level of ill health and would still have many days where I was too sick to work. I find it hard to believe that I could find meaningful employment.
Anything else to tell us:

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