No 4 point PIP descriptors results
| Submission ID: 1163143 |
| Date: 2025-04-09 11:35:23 |
| Nickname: shellbev |
| Age: 63 |
| Main health condition: Physical health |
| Main conditions that affect daily living: Cervical Spondylitis with Myelopathy. Lumbar Myelopathy. Fibromyalgia. Severe Fatigue Syndrome |
| Rate of PIP daily living component: Standard |
| 4 point descriptor score: No |
| Possibility to score at least one 4-point daily living descriptor at the next review: Unsure. Symptoms and difficulties have increased especially since the lumbar spine have deteriorated now. I’ve since been diagnosed with severe fatigue syndrome which was not identified on my current claim but the impact is immense |
| Tasks you struggle with on a day-to-day basis: Repeated activity sets my back, neck or legs into spasm lasting a few hours or weeks. I am comatose on medication for pain. Standing, walk, or stand and walk my legs hurt then my lumbar region spasms to the point of not being able to lift my legs. I lose balance regularly and fall. Upper body movements cause my neck to spasm, I cannot use my neck and hands. Fine motor skills have gone. I cannot grasp easily resulting in drops and breakages. |
| Expected income you will lose if the Green Paper cuts are imposed: £72.65 PIP daily living per week £92.87 support group ESA contribution based per week if that’s taken away too |
| Expected problems if you tried moving into work, with support from a work coach: There is no task I could complete within a job that would allow me to repeatedly change positions from standing to sitting to lying down throughout a day. I drop things having no grasp. Fibromyalgia and severe fatigue syndrome mean I’m not always alert for health and safety. The effects of my conditions means I would be off work and off work repeatedly from a day up to 6 months with no common pattern that an employer would find acceptable. I spent the last 17 years of my working life working alongside Access to Work for help with adjustment and equipment to enable me to remain employed. Eventually they could not suggest anything else that would help. |
| Anything else to tell us: I spent the last 17 years of my working life supported by Access to Work helping me with adjustments and equipment. They could not provide me with anything else that would allow me to remain at work without continual severe pain exasperated by working activity. Eventually in 2020 I was made redundant. Whilst the government are pioneering this change to help people into work I have been in work and tried for years to remain doing so. I have fallen into a black hole of the government’s making. I have done all the things they suggest and still had to admit defeat, why am I being punished because my daily activities haven’t quite qualified for 4 points in any one section of the Daily Living element? Keeping repeating the mantra that there will be support for those that need it is a ruse, they mean universal credit which you can’t get if you have any other income. They have invented a triple lock of their own, not getting daily living means you will still get mobility but it then means you won’t get universal credit…. Exceptionally clever and devious of what was meant to be a political party for the ordinary workers. |
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