No 4 point PIP descriptors results
| Submission ID: 1160950 |
| Date: 2025-04-07 18:37:22 |
| Nickname: Boudicca |
| Age: 40-50 |
| Main health condition: Both physical and mental health |
| Main conditions that affect daily living: Crohn's Disease (since childhood) Functional Bowel Disease (lifelong as caused by bowel surgery so cannot be improved), Complex PTSD (Majority Medical Trauma related, so no hope of improvement given ongoing physical medical problems), Disassociation, Depressive Disorder, Anxiety Disorder, Interstitial Cystitis (bladder pain and incontinence), Bile Reflux and Bile Malabsorption (vomit bile daily) Musculoskeletal conditions Crohns related, Fibromyalgia, Prolapsed Rectum and Impaction Osteoporosis, |
| Rate of PIP daily living component: Enhanced |
| 4 point descriptor score: No |
| Possibility to score at least one 4-point daily living descriptor at the next review: Unlikely as even though I have BOTH bladder and bowel incontinence daily, I only scored 2!!! due to PIP discriminates people with bowel and bladder incontinence, whereas ESA doesn't. Also the assessor was inaccurate but I was too ill to challenge, as all added up I got Enhanced. |
| Tasks you struggle with on a day-to-day basis: I have daily and nightly bowel and bladder incontinence. Due to utter exhaustion of my many physical conditions, pain and lack of sleep and the impact this all has on me mentally too, I find it hard to do even basic tasks and essentials, that everyone else takes for granted. I only leave the house for medical appointments. The Complex PTSD is so bad that I Disassociate constantly through the day just to survive. |
| Expected income you will lose if the Green Paper cuts are imposed: All of the PIP and if they link PIP to ESA (I'm in the Support Group) then I will lose everything despite my Hospital Consultant saying my health is 'lifelong, severe and I am at risk if placed in work conditions'. |
| Expected problems if you tried moving into work, with support from a work coach: I have both bladder and bowel incontinence daily and nightly, there is no prospect of improvement of either, so how on earth am I expected to go to work? I cannot even work from home due to going 15x (I gave up counting at that)! I am stuck on the toilet because of the impaction of stool and the prolapsed rectum too. That's not factoring in hardly any sleep, daily/nightly pain and utter exhaustion. And stress makes everything worse. I am too ill, my Hospital Consultant wrote a letter to the DWP explaining that I was too ill (see question below) and that there would be significant risk to my health. Since that letter, I have been diagnosed with Complex PTSD and constantly Dissociate just to get through the day as my life is so bad. I cannot handle any more stress, as I struggle to just get through a day with all of my medical conditions and struggle to do just basic survival tasks. I cannot handle any more in life, as I am on the edge of the ledge as it is. |
| Anything else to tell us: My mum typed this form for me, as I cannot do so myself due to my medical conditions, but I told her what I wanted to say. Regardless of what the MPs may say, there is NO protection from the DWP for the most vulnerable. My Hospital Consultant who got a C.B.E. for their work in their medical field, wrote to the DWP that "I think that she comes into the category of "having a severe lifelong disability, illness or health condition and is unlikely to ever move into work" I do believe that there is a "substantial risk" to (my name deleted for this form) and her health if she is taken from the support group and put under any work conditions." Due to this letter, I was kept in the ESA Support Group. However, despite PIP receiving this letter and all of my hospital evidence, when I was transitioned from DLA to PIP they put me through so much to get PIP as the assessor did not understand my physical health conditions, that my MP had to get involved and after the PIP process I ended up with the Mental Health Crisis Team because I no longer wanted to live. I still don't want to live, particularly with this Green Paper. Constantly having to go over and over our medical conditions, reinforces how poor our quality of life is and causes significant harm. There are those of us, me, who are too unwell to go to work and to put "work related conditions" on us will actually put our very lives in danger. Yet no one seems to care! I can barely get through a day! To put my life in the hands of a "work coach" who is not qualified in my many medical conditions and does not understand them, who is allowed to over-ride my actual Hospital Consultant is more than disgraceful, it is intentional harm! Why is there no-one in the legal profession who is protecting us? If I were to commit a crime, I would be given a free Solicitor etc, but the most vulnerable sick and disabled in this country get no-one to help them when they are innocent and also too ill to navigate the deliberate minefield of the DWP, why do we not get a free Solicitor? Why, when we are so ill that getting through a day is hard enough and we have medical evidence to back it up, do we have to constantly fill out more forms with no real help, why do we have to talk to an assessor without Legal representation and are treated like criminals? People, MPs in particular, need to understand that some people are not just 'disabled' they are actually extremely ill and so actually cannot work. I wish I did have a life, but I do not, I have no friends, never had a romantic partner/sex, and only leave the house to go to medical appointments! Yet despite this being put on the forms and proof from my Hospital Consultant that I was at risk, I was put through so much hell by the DWP that I ended up with the Mental Health Crisis Team no longer wanting to live! THAT'S how the DWP and the Government treat the vulnerable real sick and disabled in this Country, not the lies they say on TV. Also, PIP is supposed to be for additional costs for disabled people, yet people with bowel and bladder incontinence will not get that help because of how the form discriminates them with the form wording. We have A LOT of extra costs, the amount of toilet rolls we go through, baby wipes, cleaning supplies, water bills with constantly flushing the toilet and washing hands and clothing/bedding, none of this is taken into account for us on the form. Yet no one has addressed this obvious and discriminating fact! The system does NOT protect the most vulnerable, regardless of what the MPs may say, it does not as multiple reports attest too that are constantly buried by the mainstream media and ignored by the Governments (regardless of which is in power). Every time we are "moved" onto another "reformed" benefit, the most vulnerable are NEVER protected but are put on trial and punished for being ill. It is NEVER for our actual benefit, but to save money and try to either kill us off with the stress or have us slip through the cracks because we are too ill to once again do the minefield forms process. For instance, why do those Legacy ESA in the Support Group, have to "claim" for UC? Why can't they just be moved over automatically? You have all of our information, we went through hell to get into the Support Group, there is absolutely no need to put us through it all again as it is detrimental to our health, but yet you do! Once again, proof that this is not about helping us! And as to "saving money", absolute rubbish, consider the Appeals Tribunal overturn rate!!!! That costs a lot of money, so it is NOT about saving money. I repeat, it is about making people give up either through stress or falling through the cracks. Are their any proper Journalists out there anymore, who will actually investigate this and expose the actual truth? Are there any people in the Legal Profession who have a conscience and will protect the most vulnerable in Society? I will leave you with Boudicca's war cry "TRUTH AGAINST THE WORLD!" |
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