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PIP and carers assessments

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2 months 1 week ago #294533 by mel0308
PIP and carers assessments was created by mel0308
Hi everyone, hoping that someone has had experience of carer assessments and direct payments / carer personal budgets? I receive higher rate PIP for both elements and, until recently, my husband was considered my full time carer. His health has severely deteriorated recently and now I’m suddenly in the position of trying to care for him. I’m failing on all fronts, and my own health is really suffering, both physically and mentally.
My mental health nurse has suggested I have a carers assessment and says I should be entitled to extra help and support, and possibly even a carers payment or budget.
However, I’m really worried about doing this due to any negative impact on my PIP award which is due for renewal/review in 2025/26. I am getting closer to state retirement age too and don’t want to risk losing my award before then as I may have to manage on just my own income in the not-too-distant future.
We applied for attendance allowance and got it, but it’s not just about the financial support. This would also end if anything happens to him, so maintaining my own income is really important. Any advice or information would be really appreciated!

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2 months 1 week ago #294555 by BIS
Replied by BIS on topic PIP and carers assessments
Hi Mel0308

Some people get enhanced PIP and also get carers allowance. There are some people who did get PIP and have been refused carers allowance, and there are those that have lost their carers allowance when they were awarded PIP. Be aware that they are certainly likely to question your ability to give 35hrs care if you have severe needs yourself.

I can't tell you that you shouldn't apply, but it is a risk. If you have a telephone assessment at your next review, they will ask you what other benefits you receive and how you can also care for your husband. If you then find that they downgraded your enhanced mobility because of your increased caring duties, once you reach (State Pension Age), you could never get enhanced mobility again.

I hope I haven't scared you, but it is possible that carers allowance could jeopardise your PIP, but it's not a certainty.

Talk to a welfare specialist who can look into whether you are entitled to any other available benefits or disability premiums. advicelocal.uk/

BIS

Nothing on this board constitutes legal advice - always consult a professional about specific problems
The following user(s) said Thank You: mel0308

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2 months 1 week ago #294612 by mel0308
Replied by mel0308 on topic PIP and carers assessments
Thank you BIS. I agree entirely with everything you said and to confirm, I am not considering applying for carers allowance and don’t think I qualify anyway.
I’ve been told a carers needs assessment and personal carers budget is different to carers allowance and is aimed at ensuring the needs of the carer are met, to support their own health and wellbeing. It can be used to meet any needs agreed as part of a carers assessment, such as fees for health activities, social support, transport costs, paying for counselling, a washing machine - anything identified as part of the carers support plan. I was hoping someone may have direct experience of this and could tell me more.
However, I would still be really concerned about how it could be viewed when I come to have my PIP reviewed as you point out, so I don’t think a needs assessment is going to be something I could consider which is really sad. I don’t have any choice about trying to help and support my husband of 40+ years and the impact it is having on my own physical and mental health is going to reach a crisis very soon. I don’t have any support network to help me so it’s just me, and my husband turned down a care assessment as he doesn’t want a stranger coming in to help him with things like washing and dressing.
Thank you again for your words of wisdom BIS - I think you have confirmed the worries I already had.
The following user(s) said Thank You: Gaddy

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2 months 1 week ago #294670 by BIS
Replied by BIS on topic PIP and carers assessments
Hi mel0308

Sending you a virtual hug. Being a carer can be incredibly lonely, especially when you have no other support system.

Thinking of you.

BIS

Nothing on this board constitutes legal advice - always consult a professional about specific problems

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