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Pip and medication (choosing not to take it )
- Patty
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8 months 1 week ago #286822 by Patty
Pip and medication (choosing not to take it ) was created by Patty
Hi
I’ve been given a medication to try for pots symptoms by cardilogist but not been given a follow up apt to discuss this further . He basically did testing which confirmed my diagnosis , wrote a letter that I was positive for pots and told my GP to prescribe . I’ve tried expressing my concerns about side effect and what I would experience if it lowers my normal resting heart rate but no one has any answers for me . Cardiology discharged me straight away !
Currently I’m exploring other recommendations from the pots Uk website and the nhs covid assessment clinic have advised me to look into a private consult with a pots specialist.
Would this be seen as negative that I’m not willing to try it . I have Mcas and long covid and I’m incredibly sensitive now to medications hence my reluctance .
I’ve been given a medication to try for pots symptoms by cardilogist but not been given a follow up apt to discuss this further . He basically did testing which confirmed my diagnosis , wrote a letter that I was positive for pots and told my GP to prescribe . I’ve tried expressing my concerns about side effect and what I would experience if it lowers my normal resting heart rate but no one has any answers for me . Cardiology discharged me straight away !
Currently I’m exploring other recommendations from the pots Uk website and the nhs covid assessment clinic have advised me to look into a private consult with a pots specialist.
Would this be seen as negative that I’m not willing to try it . I have Mcas and long covid and I’m incredibly sensitive now to medications hence my reluctance .
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8 months 1 week ago #286847 by BIS
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Replied by BIS on topic Pip and medication (choosing not to take it )
Hi Patty
There are lots of reasons why someone might not choose to take medication. And it doesn't sound as if you are unwilling to try it - it sounds like you want to explore your options. And because of your sensitivity, you need questions answered about the side effects and risks to your long-term health. Will that be looked upon in a negative light? I can't say it won't be because assessors are notoriously funny about medication - and are always looking to see that people are taking large dosages to prove they are ill! But you are not alone in not taking something and it doesn't take away the impact of your illness on your daily living and or mobility. So mention it, just as you have done here and say you are still exploring your options. Focus on the impact of Pots on the specific PIP criteria and make sure it is clear how debilitating it is.
BIS
There are lots of reasons why someone might not choose to take medication. And it doesn't sound as if you are unwilling to try it - it sounds like you want to explore your options. And because of your sensitivity, you need questions answered about the side effects and risks to your long-term health. Will that be looked upon in a negative light? I can't say it won't be because assessors are notoriously funny about medication - and are always looking to see that people are taking large dosages to prove they are ill! But you are not alone in not taking something and it doesn't take away the impact of your illness on your daily living and or mobility. So mention it, just as you have done here and say you are still exploring your options. Focus on the impact of Pots on the specific PIP criteria and make sure it is clear how debilitating it is.
BIS
Nothing on this board constitutes legal advice - always consult a professional about specific problems
The following user(s) said Thank You: Patty
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8 months 1 week ago #286884 by Patty
Replied by Patty on topic Pip and medication (choosing not to take it )
Thankyou very much , do you have any resources specifically on pots that I can use to aid in answering the questions asked ?
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8 months 1 week ago #286894 by Patty
Replied by Patty on topic Pip and medication (choosing not to take it )
Thankyou . Are there any resources on pots on the website for help with answering questions ?
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8 months 1 week ago #286945 by BIS
Nothing on this board constitutes legal advice - always consult a professional about specific problems
Replied by BIS on topic Pip and medication (choosing not to take it )
Hi Patty
You always want to use reputable sites for you information:
The NHS - www.nhs.uk/conditions/postural-tachycardia-syndrome/
The British Heart Foundation www.bhf.org.uk/informationsupport/heart-...ask-the-experts/pots
If you've recently been diagnosed you might want to look at POTs UK, which is a charity and has lots of information on how to manage the condition: www.potsuk.org/managingpots/
We don't keep information on individual illnesses in Benefits and Work
BIS
You always want to use reputable sites for you information:
The NHS - www.nhs.uk/conditions/postural-tachycardia-syndrome/
The British Heart Foundation www.bhf.org.uk/informationsupport/heart-...ask-the-experts/pots
If you've recently been diagnosed you might want to look at POTs UK, which is a charity and has lots of information on how to manage the condition: www.potsuk.org/managingpots/
We don't keep information on individual illnesses in Benefits and Work
BIS
Nothing on this board constitutes legal advice - always consult a professional about specific problems
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