Worried about pip assessment - have rare condition

I just thought, as you have a rare condition you could print out some info about it from a reputable website (such as NHS probably not Wikipedia!) and take it with you. They may or may not look at it but it can't hurt.

Puccalove wrote: I am assuming from your post that you have not had a decision yet. That being the case I would write a letter explaining how your condition has worsened making reference to the descriptors. If possible send evidence of this such as doctor/hospital letters/reports. I would send copies of this both to Atos and to DWP. If you have not had an assessment yet I would also take a copy of this with you.

Thank you Puccalove. You're correct, I have had no assessment from ESA yet, have been waiting since December and understand I will probably have to wait some time longer.
Thanks for the advice, that's brilliant, I will get on that today.

MrsHurtyback, thank you for the information too.

What a great source of information this place is!!

Puccalove wrote: I just thought, as you have a rare condition you could print out some info about it from a reputable website (such as NHS probably not Wikipedia!) and take it with you. They may or may not look at it but it can't hurt.

There's not any information on the NHS that's one of the problems. I am one of very few cases according to my specialist in the UK and to have both is even rarer.

There are links like web MD and patient.co.uk that I can send off which I have already printed. I was going to hand one to the assessor, but it might be best to send them off before hand?

Have a look at the below link if you're interested.

www.webmd.com/digestive-disorders/tc/eso...spasm-topic-overview

It can't hurt to send info now.

Hi B

Its more important to explain your restrictions and limitations rather than just the condition itself

Bud

Bud wrote: Hi B

Its more important to explain your restrictions and limitations rather than just the condition itself

Bud

Hi Bud.

Would you say this for both pip and esa?