Contact an APPG

As well as contacting your own MP about any proposed changes, you may be able to get your message to other MPs of all parties, if there is  an All Party Parliamentary Group (APPG) which covers your condition or concern.

APPGs are informal cross-party groups of MPs and members of the House of Lords.  They bring together parliamentarians, charities and experts with a particular interest and can raise concerns with ministers.  We have focused on PIP changes in the list below, but you can contact them about any issue that you consider is of relevance to them.

You don't need to contact every group that might conceivably be relevant. Choose the one or two which most closely match your circumstances.

A short email is likely to be more useful than a very long one.  Tell the APPG if you are happy to be contacted by them about the issue.

Checking the contact details

The details below are based on Parliament's Register of All-Party Parliamentary Groups as at 29 June 2026.

APPGs and their contact details can change. We have therefore included a link to each group's entry in Parliament's official register. It is worth clicking the official register link and checking the contact details before you send your email.

If your condition isn't listed

There are hundreds of health conditions and disabilities and there will not always be an APPG specifically for yours.  You can check the full list of APPGs here.

You could instead consider one of the broader groups above, particularly the APPG on Disability, or choose a group covering the main difficulty you experience, such as mental health, mobility, social care, poverty or access to disability equipment.

You can also contact your own MP separately. APPGs are an additional route for getting condition-specific evidence heard; they are not a replacement for contacting your constituency MP.

Disability, care, poverty and practical support

Disability

This is the broadest group for concerns about PIP across all conditions and impairments. 

Contact: Fazilet Hadi, Disability Rights UK
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

Access to Disability Equipment

This group may be relevant where aids, appliances, wheelchairs or other equipment are important to your independence.

Contact: Daniel Laing, Tendo Consulting
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

Adult Social Care

Social care needs and PIP are separate systems, but there can be considerable overlap in the daily living difficulties they deal with. 

Contact: Matthew Spencer, Healthcomms Consulting Ltd
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

Ageing and Older People

This group may be relevant to older disabled people who already receive PIP and whose needs change as they age, including concerns about maintaining independence and the effect of reassessments.

Contact: Nick Herring, Age UK
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

Carers

Carers are likely to be very heavily impacted by any changes to PIP qualifying criteria..

Contact: John Perryman, Carers UK
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

Debt and Financial Inclusion

This group may be interested in evidence about the financial consequences of changes to PIP, including debt and difficulty meeting essential additional disability costs.

Contact: James Cleverley, StepChange Debt Charity
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

Disability Employment

This group may therefore be particularly relevant if you can explain how PIP helps meet additional disability costs which make it possible to work, look for work or participate more fully in society and what effect any changes may have.

Contact: Emily Marr, Office of Richard Baker MP
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

Ending the Need for Food Banks

This group may be interested in evidence about the hardship and food insecurity that may result from changes to PIP qualifying criteria.

Contact: Martha Loach, Trussell
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

Health

This is a broad health-focused parliamentary group which may be relevant to concerns about the quality of PIP assessments, the use of medical evidence and how health conditions will be dealt with under any changes to PIP.

Contact: Jasmin Adebisi, Policy Connect
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

Ending Homelessness

People without stable housing can face additional difficulties managing claims, correspondence, evidence and assessments. This group may also be interested in evidence about the effect loss of disability income can have on housing security.

Contact: Rosie Perkins, Crisis
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

Poverty and Inequality

This group may be particularly interested in evidence about the poverty caused or aggravated by changes to PIP and whether they have unequal effects on particular groups.

Contact: Priya Sahni-Nicholas, Equality Trust
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

Wheelchair Users

This group is particularly relevant to mobility, moving around, transfers, accessibility and the role of wheelchairs and other equipment in enabling independence.

Contact: Jo Fashan, Whizz Kidz
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

↑ Back to APPG index

Neurodevelopmental, neurological and cognitive conditions

Acquired Brain Injury

Contact: Chloe Hayward, UK Acquired Brain Injury Forum
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

Attention Deficit Hyperactivity Disorder (ADHD)

ADHD seems likely to be one of the conditions that the Timms review will be focusing on, so representations to this APPG by people with understanding of the effects of any proposed changes may be especially important.

Contact: Lauren Atkins, GK Strategy
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

Autism

Autism is another conditions that the Timms review may be particularly looking at, so knowledgeable submissions to this group will be vital.

Contact: Kate Wilson, National Autistic Society
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

Brain Tumours

Contact: Hugh Adams, Brain Tumour Research
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

Dementia

Contact: Tyler Bennington-Poulter, Alzheimer's Society
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

Down Syndrome

Contact: Rachael Ross, National Down Syndrome Policy Group
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

Dyslexia

Contact: British Dyslexia Association
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

Learning Disability

Contact: Matthew Harrison, Royal Mencap Society
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

Motor Neurone Disease

Contact: Sian Guest, MND Association
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

Multiple Sclerosis

Contact: Henry Tyrrell, MS Society
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

Parkinson's

Contact: Laura Mullaney, Parkinson's UK
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

Spinal Cord Injury

Contact: Glyn Hayes, Spinal Injuries Association
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

↑ Back to APPG index

Mental health, fatigue and fluctuating conditions

Eating Disorders

Contact: Hope Virgo, #DumpTheScales
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

Long Covid

Contact: Jo Dainow, Long Covid Support
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

Mental Health

This is a group that is likely to be very much on the front line of any changes to PIP.

Contact: Peter Hand, Royal College of Psychiatrists
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

Myalgic Encephalomyelitis (ME)

Contact: Sonya Chowdhury, Action for ME
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

Obstructive Sleep Apnoea

Contact: Amrit Mann, Office of Baroness Verma
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

Suicide and Self-Harm Prevention

This is another group which may need to be very involved in scrutinising any changes to PIP on behalf of the people they aim to support.

Contact: Elliot Colburn, Samaritans
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

↑ Back to APPG index

Deafness and sight loss

Deafness

Contact: Rob Geaney, RNID
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

Eye Health and Visual Impairment

Group contact
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

↑ Back to APPG index

Physical health, cancer and long-term conditions

Cancer

This is the broad cancer APPG and may be useful where there is no parliamentary group specifically covering your type of cancer. 

Contact: Bekki Smiddy, Macmillan Cancer Support
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

Diabetes

Contact: Alicia Kernaghan, Office of Tom Gordon MP
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

Endometriosis

Contact: Emily Manning, Endometriosis UK
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

Less Survivable Cancers

Contact: Abigail Bateman, Pancreatic Cancer UK
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

Liver Disease and Liver Cancer

Contact: Richard Daniels, British Liver Trust
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

Obesity

Contact: Healthcomms Consulting Ltd
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

Osteoporosis and Bone Health

Contact: James Dobson, Royal Osteoporosis Society
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

Prostate Cancer

Contact: Joint Secretariat
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

Respiratory Health

Contact: Hugh McKinney, Denovo Strategy Ltd
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

Vascular and Venous Disease

Contact: Katie Davies, Healthcomms Consulting Ltd
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Official APPG register page

↑ Back to APPG index

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  • Thank you for your comment. Comments are moderated before being published.
    · 1 years ago
    Hi there, Do I write to the registered contact (Whom is a MP) rather than the secretary for the relevant group(s)?   I was just going to forward the All Parliamentary Group a copy of the letter I have sent to my MP Re:  Benefits and lack of treatment on NHS with personal examples.
  • Thank you for your comment. Comments are moderated before being published.
    · 1 years ago
    There are people who are disabled who could work, if we lived in a society where people were supported. If Employers cared enough, and if they in turn were supported to support those who need supporting!! And there are people who are disabled that can't work, or can no longer work. There are a thousand and one ways in which disabilities affect people, and a thousand and one ways in which people need support, whether financially or otherwise.
    We don't live in a society where differences are embraced, never mind disability differences. And yet once again those of us with disabilities, who usually fall within the poorest in society, are punished and kicked and turned on, to claw back money that the governments themselves have spaffed up against the wall in one easy way or another.

    I do wonder if they will break the Tories record of lives lost to suicide etc because of their proposed cuts.
  • Thank you for your comment. Comments are moderated before being published.
    · 1 years ago
    Know this isn't right area but can't find where to write but really worried anxious my review has been in since 31st Oct 2024 and still haven't got outcome it runs out in June so I cant use it for my needs after this date incase I get turned down with all the changes and have to pay back.. Just a very worrying time
    • Thank you for your comment. Comments are moderated before being published.
      · 1 years ago
      @Julie If it is coming close to the deadline, and they haven't finished your assessment, they will write to you with an extension. Don't worry, they won't just stop your payments, and to the best of my knowledge (in that I've never heard it before) you won't pay anything back because of how long it's taken them to deal with your review. If you're worried though give them a call.
  • Thank you for your comment. Comments are moderated before being published.
    · 1 years ago
    I’ve have severe fibromyalgia & mental health challenges. I struggle each day with chronic fatigue. 
    care for my disabled 88 year old Mother, who has multiple chronic health conditions. 

    I fear losing PIP & how I would financially cope, in the event that my beautiful & kind hearted Mother, passed away!


  • Thank you for your comment. Comments are moderated before being published.
    · 1 years ago
    Response received from The public contact for the Carers All-Party Parliamentary group today:

    Thank you very much for contacting me regarding your concerns about the Government's proposed reforms to the welfare system.

    I am so sorry to hear about the distress that this has understandably caused you and other carers. We have been contacted by lots of people in the past two weeks who have shared with us the impact that the devastating changes will have on them and their families.

    As Secretariat for the APPG on Carers, I have already suggested to the Chair of the Group, Anna Dixon MP, that we shortly hold a meeting to enable MPs and Peers who are Members of the APPG to discuss the proposals, and the impact they will have on carers like yourself, and the people you care for, in detail. I will also be sharing your email with Anna and other Members of the Group.

    In case you haven't seen - Carers UK issued the below statement following the Government's Spring Statement last week - as you will see, we said that the proposals were 'shocking' and 'shameful', and an 'unprecedented step in the wrong direction and must be swiftly rectified'. https://www.carersuk.org/press-releases/spring-statement-shocking-carers-benefits-cuts-are-a-first-in-decades/

    As a first step in fighting against these changes, Carers UK has produced a detailed policy briefing which outlines the proposals we are most concerned about, and the impact these will have on carers. You can see this here:
    https://www.carersuk.org/media/l2ua5lqd/carers-uk-briefing-on-pathways-to-work-green-paper-v27-03-2025.pdf

    We have also created a short survey to enable carers to tell us in detail about the impact the reforms will have on them and those they care for. We will use the results from this in the campaign we are running to oppose the reforms. If you would like to complete the survey, you can do so here: https://www.surveymonkey.com/r/2W82GT2

    We have also been working hard to secure media focus on the impacts the reforms will have on carers. Our Director of Policy and Public Affairs, Emily Holzhausen CBE, discussed the impact of the benefits cuts on carers on the Today Programme. You can also read about our concerns in The Guardian, The Independent and The Mirror.

    We are also calling on MPs to push back against the proposed changes. On Thursday last week, we worked with Steve Darling MP, Liberal Democrat spokesperson for Work and Pensions, who raised an Urgent Question asking the Government to make a statement on the impact on unpaid carers because of their proposals. You can watch the video here. The changes were also debated in the House of Lords. We will continue to work with MPs and Peers from all parties to raise awareness of how the proposed changes will have a huge impact on thousands of carers.

    Finally, I wanted to ask if you would be willing to speak to my colleague Grace (CC’d here) who works in our campaigns and media team. We are looking for people who would be willing to talk about the impact the changes would have on them in support of the campaign we are shortly going to be launching. We will of course completely understand if this isn’t something you would like to do, but if you would be interested in having an initial chat to explore this in more detail, please do not hesitate to contact either Grace or myself.

    I hope this is helpful and thank you again for getting in touch.
  • Thank you for your comment. Comments are moderated before being published.
    · 1 years ago
    I have emailed the All Party Parliamentary Groups for Health, Carers, Debt and Financial Inclusion, Genetic, Rare and Undiagnosed Conditions and Poverty & Inequality, as follows: 


    These proposals will plunge families like ours into poverty, and we will not be able to ameliorate our circumstances through work. Under these proposals, our household is likely to lose around £900 per month, comprised of LCWRA, PIP daily living and Carer’s Element of UC.

    My husband, who has Myotonic Dystrophy, a progressive neurological disease, has significant daytime fatigue, frequent falls and swallowing difficulties, among other symptoms. Under PIP proposals he would be likely deemed ineligible for PIP Daily Living, as he would not currently score 4 points in one category. My husband is unemployable, due to the significant risk of choking or falling, as well as his daytime fatigue.

    I work part-time in a relatively low-paid NHS administrative job. As I have to care for my husband, I am unable to work full-time. I have calculated that if I were successful in gaining a more senior NHS role our financial position would be improved by £12 per month in the first year, and our total income would in fact drop by £300 per month in the third year.

    We are bringing up two daughters.

    The government has repeatedly said they are ‘putting disabled people at the heart’ of everything they do. But these proposals are only pulling the rug from under us, leaving us with nowhere to turn and nothing we can do to improve our financial outlook. No amount of support from a work coach will make my husband employable. What is more, we cannot even have our say, as the most important elements of the changes are not being consulted on.

    Family carers are doing a job that Social Care is unable to in these times, but these proposals are making that job near impossible to do.

    The headline loss average of £1700 per year does not apply to my family. The loss would be far greater and I do not see how we would manage at all.

    I implore you to see that these proposals are draconian, that they are discriminatory against the long-term sick and disabled, and that they will cause devastation for families like us. I respectfully ask that you use your influence to oppose these changes.

    Yours sincerely,
  • Thank you for your comment. Comments are moderated before being published.
    · 1 years ago
    Which APPG do you think is the most appropriate for ADHD? The autism one?
  • Thank you for your comment. Comments are moderated before being published.
    · 1 years ago
    I have contacted Deafness, Eye Health/visual impairment, diabetes and Usher's syndrome (I have congenital Rubella Syndrome which has many of the features of Usher's, namely both sight and hearing loss).  
    • Thank you for your comment. Comments are moderated before being published.
      · 1 years ago
      @Neil Cook My guess is it is people who became Deaf rather then those who were born Deaf, but this is just a guess
    • Thank you for your comment. Comments are moderated before being published.
      · 1 years ago
      @Neil Cook Usher syndrome is a genetic malformation whereby new born babies have varying degrees of hearing loss, ranging from mild to profound. Their vision develops normally until puberty when they develop retinitis pigmentosa, an incurable, degenerative eye condition which first manifests itself with night blindness.  

      Rubella, on the other hand, will show up at birth with very obvious, large cataracts which will need urgent removal to enable visual development (when I was born in 1968 one had to wait until the age of five due to instrumentation before surgery could be performed). This will permanently impair vision due to the development of nystagmus. Hearing loss is the most common of the triad of Congenital Rubella Syndrome (followed by ocular malfunction and congenital heart disease, plus, sadly in many cases, quite serious cognitive issues).

      Hope this helps to explain why I contacted the parliamentary Ushers Syndrome group
    • Thank you for your comment. Comments are moderated before being published.
      · 1 years ago
      @Matt I'm curious what us contacted deafness? I know it's a hearing impairment but I've never heard of that type before
  • Thank you for your comment. Comments are moderated before being published.
    · 1 years ago


    Has any other veteran identified an anomaly concerning Veterans who receive either War Pensions Scheme (WPS) or Armed Forces Compensation Scheme (AFCS) due to injuries/illnesses incurred through military service depending on whether they were injured before or after April 2005.

    I am in receipt of a 100% War Pension due to injuries received in Iraq in 2004.  As a consequence on discharge I applied  for and qualified for Higher Rate of DLA/PIP.  However I believe veterans receiving PIP are disadvantage because they are subject to reassessment under the new rules. Those injured after April 2005 receive a different scheme called the Armed Forces Compensation Scheme (AFCS) and as a consequence can also receive the Veterans equivalent of PIP known as Guaranteed Income Payment (GIP). This is a lifetime payment with no reassessments and is administered by the Veterans Agency not DWP.

    In essence veterans injured in 2004 and before are thrown to the wolves of the DWP who have to experience of dealing with former members of the Armed Forces.
    • Thank you for your comment. Comments are moderated before being published.
      · 1 years ago
      @Les
      Hi Les, I e been searching the Internet for any reference to Veterans in all of this mess.  A few links below that I have found but, no reference directly to War Pensions as per usual, only mentions AFCS in one of them:





      Please do post and let us know if you get any answers from your MP or OFV.

      Cheers!
    • Thank you for your comment. Comments are moderated before being published.
      · 1 years ago
      @Mick Hi Mick.  I’ve written to my local MP and the Office for Veterans.  Still waiting for response… Wait out 🙈😁
    • Thank you for your comment. Comments are moderated before being published.
      · 1 years ago
      @sara Hi Sarah..I’ve actually written to my MP and the Office for Veterans.  Still awaiting response.  Wait out 🙈
    • Thank you for your comment. Comments are moderated before being published.
      · 1 years ago
      @Mick
      Just to add, when I was dealing with the year and a half battle, I tried to direct and communicate everything through Amber Rudd, the DWP Work and Pensions minister at that time and also the Veteran's affairs minister Andrew Robathan.  It changed part way through the whole thing and I think Ben Wallace then took over, followed later by Johnny Mercer.

      The response I got with the excuses and fobbing off about WP having other supplements in place of PIP came from Alok Sharma who was the employment minister.

      Before PIP myself and my partner were both on indefinite DLA highest rates and no more  reviews.  PIP then reviewed me and took me to a 3 year enhanced.  A further PIP review later put me to the current indefinite 10 year.  My partner went to PIP from DLA and got indefinite 10 year.  Who the hell knows what will happen when our reviews come around under this new load of nonsense or what they are going to change the PIP system to after the review and redesign it again, as they have said they intend to do.
    • Thank you for your comment. Comments are moderated before being published.
      · 1 years ago
      @Les @Les, this is exactly the sort of specific case scenario which has been overlooked and which should be brought to the attention of Endall and Thieves. I hope you can get it to your mp at least because it's an example of how the government has not acknowledged the complex fall out of the proposals. The more concrete examples we can gather and present for scrutiny the better.
  • Thank you for your comment. Comments are moderated before being published.
    · 1 years ago
    The link was with reference to the question at the end of my post, which was:

    • Thank you for your comment. Comments are moderated before being published.
      · 1 years ago
      @James I particularly like all your comments James
    • Thank you for your comment. Comments are moderated before being published.
      · 1 years ago
      @James It's too late though for that,they have another 4 years and all this will be over.there is no-one on our side 
    • Thank you for your comment. Comments are moderated before being published.
      · 1 years ago
      @Dez Surely this green paper consultation is questionable too, though. B&W have called it 'bogus'. It is not a genuine attempt to engage with the public on the actual contents of the upcoming May bill (which the government is trying to certify as a money bill but which they have claimed is about supporting disabled people into work), and it's not supposed to end until 30 June.

      It just all looks procedurally irregular. 
    • Thank you for your comment. Comments are moderated before being published.
      · 1 years ago
      @keepingitreal Unfortunately, I believe it was the consultation and the way it was managed that was deemed unlawful, not the proposal itself. Hence why Labour have had no qualms about adopting it themselves. 

      The Tories were found to be not fully transparent about the fact that they intended to do away with the disability element of UC for those not eligible for PIP and this meant that people could not respond to the consultation properly. Because they didn't know exactly what they were responding to. Thus, it was deemed by these duplicitous actions that the Tories were not interested in helping disabled people but saving money and that was how the courts nailed them. 

      It was also easier to drag the Tories into court because the Tories were no longer in government at this point. Doing this with a government in power would probably be a different and much trickier process but let's hope those in our corner find a way of doing so. Honestly, I'd just be happy with Starmer being tripped up as much as possible. He responded like a complete child to this ruling so he clearly deems disability advocates and the courts a huge inconvenience and I hope he knows no peace while he pushes these awful proposals through. 
    • Thank you for your comment. Comments are moderated before being published.
      · 1 years ago
      @keepingitreal They did because it was a statutory instrument regulation of an existing act. This is why Starmer is bringing in a new act of parliament which the judges will not be able to over ride. This is also the reason why we must vote for a party that will stand up for us and not turn its back on us once in power. Frankly I do not trust anybody anymore and I also want to live in a society that is less technology based and more people based
  • Thank you for your comment. Comments are moderated before being published.
    · 1 years ago
    1) How can they produce a bill in May when they've already said the green paper consultation will run until 30 June?

    2) How can they certify it as a money bill when they have claimed it is about supporting disabled people into work, giving them dignity, not writing them off, blah blah? 

    3) How can they go ahead without a proper impact statement? 

    • Thank you for your comment. Comments are moderated before being published.
      · 1 years ago
      @keepingitreal I wonder if Starmer & Co are panicking about possible legal challenges etc. Also, don't forget there are significant rumours that Reeves will have to increase taxes in the Autumn - and if there is one thing that scares Labour is the image that they are a high tax, high spend party.
  • Thank you for your comment. Comments are moderated before being published.
    · 1 years ago
    It actually just gets worse doesn't it? They are hell bent on rushing this through before anyone can delay or stop it. 
  • Thank you for your comment. Comments are moderated before being published.
    · 1 years ago
    Is there any point when this is going on:

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      · 1 years ago
      @Mick This honestly makes my blood boil! How can they claim to support and advocate for us when they so enthusiastically back these reforms and cuts to disability benefits!? 🤬
    • Thank you for your comment. Comments are moderated before being published.
      · 1 years ago
      @Anniesmum 2024 spring, even a person from the ME charity, during a parliamentary work committee was mainly talking about HIMSELF getting a job at THAT charity! I was absolutely fuming after seeing his naïve believe, that they will be HELPING get suitable jobs! He didn't realise, he is setting all ME/CFS sufferers as “capable to get back into work”. I did ask him to correct this error, and I think, he did, but the damage was done! And no firm defence of sufferers not ever able to get back to work! I could see a year ago, what's on the DWP mind...
    • Thank you for your comment. Comments are moderated before being published.
      · 1 years ago
      @Mick Should we contact them anyway? Not sure what to do about this. This is one of the conditions I suffer with. Bloody hell! How can they sit on the board for M.E and then want benefit cuts. 😳
  • Thank you for your comment. Comments are moderated before being published.
    · 1 years ago
    Done. 
    • Thank you for your comment. Comments are moderated before being published.
      · 1 years ago
      @Alpro Cherry Try Arla Raspberry too
  • Thank you for your comment. Comments are moderated before being published.
    · 1 years ago
    How will they decide WHO with Autism qualifies & who DOESN’T?My Nephew is non verbal & non communicative and WILL never work, have a family or contribute to society do is HE expected to go out & be an Entrepreneur?😡
  • Thank you for your comment. Comments are moderated before being published.
    · 1 years ago
    Thanks for the list and info. Im writing to as many as seem relevant (my husband’s condition isn’t listed here)- 
    Poverty & Inequality
    Genetic, rare & undiagnosed conditions
    Carers
    Debt & financial inclusion
    Health
  • Thank you for your comment. Comments are moderated before being published.
    · 1 years ago
    Don't see anything about epilepsy or seizures on these lists but not really sure where it would be as it is a symptom not an illness in its own right.
    • Thank you for your comment. Comments are moderated before being published.
      · 1 years ago
      @Elizabeth Vidler Seizures are the symptom, but, epilepsy is a disease/illness. 
  • Thank you for your comment. Comments are moderated before being published.
    · 1 years ago
    Thank you for putting up the link so that we can send emails to relevant people regarding the proposed cuts that this labour government are proposing.

    I have emailed several people that covers several conditions that i have .

    This money bill that they are planning to introduce in may is absolutely appalling.

    Like thousands of us with health issues this is such a major worry for us all .    
    • Thank you for your comment. Comments are moderated before being published.
      · 1 years ago
      @colcs Sorry what do you mean by money bill in may? 
  • Thank you for your comment. Comments are moderated before being published.
    · 1 years ago
    Thanks, will do. Alarmed at the prospect that Labour are going to make this a money bill, without any safeguards from the Lords (I suspect they know the strength of feeling already) and I presume if it's a money bill, there can be no Judicial Review?
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      · 1 years ago
      @Anon A money bill is (probably called) a finance bill brought in by the Treasury, usually at the time of the Budget, or Spring Fiscal Statement. It cannot be opposed by the House of Lords (1911 Parliament Act) and thus can secure Royal Assent very quickly (in months rather than years). Also, it would be very difficult to challenge this through the Courts. 
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      · 1 years ago
      @Neil Cook He will get a big payday when he leaves office, I'd bet my life on it.  They won't tax the rich, when it's obvious to everyone that this is what needs to be done. 
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      · 1 years ago
      @Matt Proves what a coward Starmers is
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      · 1 years ago
      @Matt What is a money bill?