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PIP - MR advice please. Managing medication and using toilet

  • Sarah
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19 hours 48 minutes ago #305911 by Sarah
Hello,

I just had a review and although I have been awarded standard care (high mobility) due to having ME. I have scored 0 in two areas that I think should have at least scored a 1.

Managing medication - as I take these at night when I am the most exhausted and brain fogged, my son sorts them into a dossette box at the start of every week. If this isn't done I get confused over what I have and haven't taken. Causing issues of under or over dosing. Which with amitriptyline is significant.

I also need to set an alarm to take my cbd paste late afternoon. As I will either forget to take it or take it twice.

I think this meets the criteria for at least 1 point.

The other issue is I have needed to install a comfort height toilet. As I've had ME since 2011 and due to losing muscle strength (and being fairly tall) using a standard toilet was becoming difficult as I don't have the strength to use the rail to help pull myself up. But wasn't awarded any points.

Someone has said for medication PIP look for severe cognitive decline like dementia or MH issues. But this isn't in the regs, so I'd appreciate any insight on how this decision is made.

I am 1 point away from enhanced care rate, so I am seriously considering putting in an MR.

Thank you.

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15 hours 5 minutes ago #305932 by LL26
Hi Sarah,
Firstly there is nothing about cognitive deficiency etc in any of the descriptor definitions. As long as you have a health problem that causes you to have problems with the activity then you should be able to score points according to the level of disability. However, ME normally does cause cognitive problems anyway so it seems DwP is wrong on both counts!
A dossett box would certainly comprise an to manage medication ' clearly if you over or under dose or mix tablets incorrectly this could be unsafe and give rise to a risk of substantial harm.
I'm not sure what a comfort toilet is. If this is just a taller toilet that anyone could commonly use, I'm not sure this would count as an aid or appliance. There was a fairly recent case about using a bed as an aid for dressing ie use to sit on. Unless there is something very peculiar about the use of the bed, it can't be an aid as most people will sit on the bed whilst dressing. Similarly if your toilet is specifically for disabled people then I think it could be an aid. However is there still a safety issue even with your new toilet. Even though this might make things easier if you still feel unbalanced etc as you are about to use the toilet or get up again then you may still need to use a grab rail. You can score points if you need to use an aid you don't actually have to have it.
Since you need only 1 point I think it is certainly worthwhile arguing for the extra points at MR.
I hope this helps.
LL26

Nothing on this board constitutes legal advice - always consult a professional about specific problems
The following user(s) said Thank You: Sarah

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13 hours 49 minutes ago #305937 by BIS
Hi Sarah

To add to what LL26 has said.

Apologies if you think you have already written this correctly - but I would check before sending off your MR.

Regarding the dosette box. The DWP has sneakily tightened this, and how they are prepared to award points . I have noticed a lot of people saying they have not been awarded the 1 point that they expected. The reason appears in the Guide to PIP claims and Reviews page 45. I would look at how you described the need for the dossette box and ensure the links to the ME and brain fog, exhaustion etc are strong enough. Emphasise that you need the support of your son. If you have any examples of when you took the wrong dosage, say so.

Re - the toilet. - Have a look at what it says in the Guide to PIP Claims and Reviews page 52 - where it talks about describing the difficulties you have with an unadapted toilet. It is that you need to emphasise the most - not the new toilet. I'm not saying you don't need to include it - of course you need to say, but make sure you have addressed enough of why you struggled with your previous toilet. I'm sure that the reliability and safety issues must affect you - page 53 -so check that out too.

Make sure when you put in your MR - you tell them that you are satisfied with your mobility award and you are only asking them to reconsider the care issue.

BIS

Nothing on this board constitutes legal advice - always consult a professional about specific problems
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