Non Epileptic Attack Disorder and PIP review

videos yes, then you can always write about them. i have no one else around to witness so its helpful. those extra things heighten my stress when it comes to NEAD which is stress related anyway so it is all linked together for me. the feeling i have of helpnessness when i have one seizure trigger another and another because i know theres little can be done contriubutes to that cycle.

You touched upon the subject of always having to ‘manage this condition’. One of my physio letters mentions making steady progress managing NEAD and FND symptoms. But I somehow feel that might go against me?

It’s still affecting my daily life and especially my mental health. I’m not sure lying down at home is effectively managing my symptoms at all tbh.

Hi Gordon,

No you do make a very good point and I am debating which letters to include with my PIP review because I think must not tell lies makes a point how it is a condition you have to constantly manage.

I do have a letter where a psychiatrist wrote my anxiety has reduced, with which I disagree, but other elements of the letter are actually very insightful about my condition.

I suppose in this context, you mean that although there's a reduction in anxiety, it means I can still score points. I would say my reduction is from extreme to severe. So in a sense I can go 25m more or 40m more. etc.

Is that what you mean?

Do you advise including letters like the aforementioned?

I am struggling to think of a sentence that explains the frequency of the seizures. Also the nature of them has evolved too. It is such a complex condition. I am tempted to ask my neuropsychologist for advice but they said share our details if they want to contact us and that’s all the last time we spoke during therapy.

Do you have any guidance you could offer?