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Successful change over.

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6 years 9 months ago #206849 by Val46
Successful change over. was created by Val46
I have been a member here for quite a few years and thankfully I have always received good help from this site. I had been on DLA high rate indefinitely & like everyone was absolutely dreading the changes. They finally came to me last December, had a face to face at home. It took about an hour, mostly going through more explanation about my answers in the form. I did that ridiculous manual test for moving my head sideways but still fail to see the point of it.
I don't know what the assessors qualifications were, didn't ask, but she was fairly straightforward & quite thorough in the details. I didn't get any sense of being for me or against me, infact she felt quite emotionless but I don't think she would have taken to time wasters or anyone lying or exaggerating too kindly either.
I have a severe autoimmune disease which affects my joints and skin. I had to show all my medical & Consultant notes/records, all my medication & she made a list of adaptions made by NHS OTs. These aren't extensive, stair rail, toilet seat kind of thing.
I have just received notice that I've been awarded standard care & enhanced mobility. So relieved about the mobility, that was my greatest concern, I had literally worried myself sick about it. I am ok with the standard care but was disappointed that I got no points for taking medication. My skin problems are vast and treatment is daily, very time consuming and difficult, but that's the new rules I guess. I just got through on 9 points & I think that is where having help from the hospital OT came in.
Overall, apart from the extreme worry and stress, I feel I was treated fairly. Any phone calls about my claim were always handled very politely, I had no cause for complaints about the process in that regard. Clearly it took quite a toll on my health especially when you start researching on it and read all the horror stories, I really don't know how some people cope, it was truamatic enough without any additional problems, so I really sympathize with those who are having difficulties. I know when I was reading up on it I always felt some relief when I read a positive experience & it gave me hope so that's why I'm writing this. The system can sometimes work, eventually ! so anyone in the midst of this keep perseverance & hope going !

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6 years 9 months ago #206864 by Gordon
Replied by Gordon on topic Successful change over.
Val

Many congratulations on the award, well done.

At best you could only have scored one point for your medication so it would not have made a difference to the award.

Gordon

tags: @RESULT @PIP

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