ESA support group

Hi everyone
I am a total newbie and very confused. I have never had to claim benefit before and I am blown away by how confusing everything is? I had to leave my job in November 2013 due to illness. I was diagnosed with a condition called episodic cluster headaches, which has totally turned my life upside down. I use oxygen therapy and have to self inject drugs up to 3 times a day and also though the night. In February I was told to go to an assessment centre where I explained my condition and from there I was placed into something called a support group. I rang DWP as I had never heard of this and asked if I needed to continue sending in sick notes and I was told no as I I had peen placed into the support group for 6 months. My claim amount increased to £125.00 per week. Since I went for assessment my condition has worsened and I have just had a new diagnosis from my consultant of chronic cluster headaches ( meaning there is not much chance of any improvement) Does anyone know what I need to do now? I am very worried that my support group entitlement will end and I wont be able to manage financially. There is absolutely no chance of me returning to work as the attacks last up to 2 hours a time?

Hi Gordon
Thank you for your reply. Its like a minefield! Is there a specific period of time you need to claim ESA in the support group before you can claim PIP? I called the DWP and they say I can not claim PIP until I have been re assessed for ESA support group at the end of my initial awarded ( I was awarded 6 months) they will then need to be satisfied that my case warrants another 6 months in support group. If this is the case I can then apply for PIP. This hardly seems fair?
Thanks
Julie

Hi
I am just taking a tentative look at the PIP guidance and I have a few questions. I am hoping you can advise me accordingly. My condition is such that for varying periods I am absolutely fine physically although these good periods can vary from a couple of hours to a number of days. When I am experiencing a particularly bad cluster they can run into days of constant pain. Episodes come and go with no prior warning and are not trigger lead but following a bad episode I am left totally fatigued, confused and unfocussed for quite some time. During an actual attack there is no way I could prepare a meal or dress myself and would not even think about getting a wash and as I said before I can have several attacks through the day. When I am not in the process or aftermath of an episode I am totally fine so I am struggling how to be totally accurate in my answers. Do I base my answers on good or bad days?
The mobility part is also tricky. I have to take portable oxygen everywhere I go and Should I have an attack when I am out I could not navigate my way back home without considerable support. Again fitting into a tick box is difficult and I do not want to mislead.
Some advise before I begin the application would be very welcome.
Julie